In my biography I stated that I am "Moya Moya" survivor. What is that? Basically my two carotid arteries, the main blood source to the brain, are closed up. At 39 I had two strokes plus more. Moya Moya is the reason I had my first stroke. My second one happened after my first by-pass surgery. It affects children more than adults, but I have it. The brain scans above show a Moya Moya versus a normal brain. I don't have mine - bummer! I know that I had them but they are lost. I would love to show you mine. There are very few books written about Moya Moya. Using Amazon as my source, the books out there are textbooks; studies for the medical community; written in Japanese; and one for parents whose children have it. There are no books written by an adult who has it.
Here is a definition of Moya Moya Disease from Boston's Children Hospital:
- Moyamoya disease, which is also known as , is a rare but very serious condition in which the walls of the internal —the vessels that supply blood to important areas of the brain—become thickened and narrowed. This causes the flow of oxygen-rich blood to the child's brain to gradually slow down, and makes it more likely that a will form.
- This reduced blood and formation of blood clots are major risk factors for either a transient ischemic attack (TIA) also called a “mini-stroke,”or a full-fledged stroke.
- · “Moyamoya” means “puff of smoke” in Japanese. The disease gets its name from the wispy, tangled appearance of the new blood vessels that emerge in the brain (as the body attempts to compensate for the inadequate blood supply).
- · Moyamoya disease is a progressive condition, meaning that symptoms worsen over time and the child's chances of suffering a stroke increases.
- · The only proven treatment for is surgery to create a healthy, adequate new supply of blood for the impacted
It occurs in the children more than adults. That is why the above is for children. It sucks for all of us who have it.