I am a mom and wife. I also am a Moya Moya survivor - a very rare brain disorder. I love to cook, take pictures, create cards, scrapbooks and home decor. Mostly I am a mom to my beautiful kids and a wife to my awesome husband. This is my adventure through life.
Friday, June 2, 2017
Starting a MoyaMoya Blog
Hi!
I have been thinking a lot lately. Yes, I am stuck in my own brain lately. At times that is not where I want to be. My thoughts are I still want to write a book regarding my experience with Moya Moya, because I am an adult with it. Most of the articles are about kids who have it. This disease/syndrome is at times horrible to me. It must be hell on parents and kids! An adult perspective is rarely out there, and it is needed. Often I am told to write about what I know. Well, I know Moya Moya and the aftermath. I am living it!
I believe that having a separate blog is the answer. When I post about my experiences and post it on FB in the Moya Moya sites, I get more readers than with my cooking and craft posts. I am keeping this open because I do like posting my food and craft items.
I am going to ask you to keep your eyes open for the new blog. I am working on it. I haven't decided a name for it. I know that Moya Moya is part of the address. Moya Moya in the desert or Palm Springs. I don't know yet. It is a work in progress.
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